Currently there is no cure for NF but there are facilities and people focused on helping and treating the many aspects of NF1, NF2 and schwannomatosis. There are NF specialists in Grand Rapids, Ann Arbor, Royal Oak, and Detroit.  Contact any of these clinics for information or to make an appointment.

NF Clinic Grand Rapids
Helen DeVos Children's Hospital
Grand Rapids, MI 49503

 Nurse Coordinator - RaeAnn Moore - 616-267-2954

APPOINTMENTS:
CHILDREN - Drs. Daniel Fain, Harlori Bains and Robin Cook - 616-267-2500
ADULTS - Dr. Bernie Eisenga - 616-391-2123; Dr. Cynthia Hingtgen - 616-267-7104
INFORMATION: 616-451-3699
FAX:  616-267-2501

Comprehensive NF1 diagnosis and management for both adults and children.  NF2 diagnosis and monitoring for adults and teens. Schwannomatosis diagnosis and management.

University of Michigan Pediatric Genetics
C. S. Mott Children's Hospital
1540 East Hospital Drive
Ann Arbor, MI 48109

Phone:  734-764-0579
Fax:  734-763-6561

University of Michigan Adult Genetics
24 Frank Lloyd Wright Dr.
GPS: 4029 Ave Maria Drive Lobby C, Suite 1300
Ann Arbor, MI  48105

Phone:  734-763-2532

University of Michigan Neurosurgery (NF2, all ages)
A. Alfred Taubman Health Care Center
1500 E Medical Center Dr.
Floor 2 Reception G
Ann Arbor, MI 48109

Dr. B. Gregory Thompson, neurosurgeon
Phone: 734-936-7010
Fax: 734-936-9294

Corewell Health East - NF Clinic (children only)
McBrien Pediatric Neurology - Royal Oak 
3555 W 13-Mile Rd Royal Oak, MI 48073

Phone:  248-551-3302
Kate Gowans, MD, hematology-oncology
Heather Little, DO, neurology
Sue Burke, RN, BSN, CPN, Clinical Nurse Coordinator
NF1, NF2, and Schwannomatosis

Henry Ford Health System NF Clinic (adults and adolescents)
Detroit, MI 48202

Phone:  313-916-2723
Fax: 313-916-7139
Tobias Walbert, MD, PhD, MPH, Neuro-Oncology