9th Annual West Bloomfield Miles 4NF
Jun
22
9:30 AM09:30

9th Annual West Bloomfield Miles 4NF

Join us for the 9th Annual Miles 4NF!

This great event has raised $159,783 since 2011 including over $30k in 2018 for NF Research. See the below links to register and see how you can make a difference with your contribution to this event.

EVENT DETAILS
Miles 4NF walks take place across the country. They are a great way to involve family and friends, meet others who are affected by neurofibromatosis, raise awareness of this disorder and create funding for NF research.

Click here to Register for the event. The deadline for early registration is Friday, June 7 to guarantee a t-shirt. Regular registration is from Saturday, June 8 to Friday, June 21. You can also register the day of the event.

ASK OTHERS TO JOIN YOU!  FORM A TEAM!
Recruit your family, friends, co-workers and neighbors to join you at our walk. Support each other and promote health and fitness while helping those with neurofibromatosis.

RAISE FUNDS FOR NF MICHIGAN!
*Collect donations in the form of a check (make checks payable to NF Michigan) OR start an Online Fundraiser.

Donation Request Letter

Sponsorship Request Letter

2018 Miles4NF Thank You Letter


*Double your donation - ask your employer if there is a Matching Gift Program
*There is a prize for the individual who raises the most money.

RAIN OR SHINE!
Our ninth annual walk will take place at the Drake Sports Park in West Bloomfield. In addition to all of the natural beauty surrounding us, there is a .7 mile walking path with 8 exercise stations along the way. The park is smoke free. Smoking is not permitted within park boundaries. Pets are permitted, but must be on a maximum of a 6 foot leash and under the control of the owner. Owners  are required to clean up after their pet(s). Finally, neurofibromatosis does not stop because of inclement weather nor should we! 

Day of Event!
9:30 - 10:45 am Registration/Check In for ALL Participants
10:45 am Opening Ceremony
11:00 am Walk Begins
Noon (approx) Closing Ceremony

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NF Camp 2019
Aug
16
to Aug 18

NF Camp 2019

Justin Nesmith & Karen Warren Memorial Camp

Come and enjoy a family weekend of fun and social connections. NF Camp Michigan will provide opportunities for children aged 5-16 to build self-esteem, gain independence, and forge relationships with other children living with NF. Parents will benefit by connecting with other parents who have children living with this disorder. At NF Camp Michigan, families will share the experience of being part of a team, while having fun in a safe, exciting, and supportive environment.

Located at Sherman Lake Camp 6225 N 39th St Augusta, MI 49012

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Ice Cream Social for NF - Farmington Hills
Jun
2
12:00 PM12:00

Ice Cream Social for NF - Farmington Hills

Join us for the 5th annual Ice Cream Social for NF at the Rausch home in Farmington Hills. Fun, good friends, and tasty treats for a great cause! Join us as we aim to raise funds for NF research. With the help of our friends over the past 4 years, we have been able to raise over $15k for NF research!

  • Ice Cream

  • Pizza

  • Bounce House

  • Yard Games

Karl and Terri Rausch's backyard

33523 Oak Point Circle

Farmington Hills, MI 48331

Please RSVP to Terri Rausch at terrirausch@yahoo.com or 248-819-1852

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Knock Out NF!
May
24
6:00 PM18:00

Knock Out NF!

Come "Knock Out NF" with Neurofibromatosis (NF) Michigan! This benefit event is hosted by the Board of Directors of NF Michigan, a 501(c)(3) nonprofit organization dedicated to enhancing the quality of life for those affected by Neurofibromatosis in Michigan.

The night will consist of raffle, games, dinner, music, and drinks and proceeds of the event will help NF Michigan's programs across the state of Michigan.  So, come join us as we knock out barriers, stigma, misinformation, tumors, and fear!

Get Tickets

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NF Coffee Chat
Apr
14
1:00 PM13:00

NF Coffee Chat

Come join us if you are in the Lansing area for another “Coffee Chat”. Coffee Chats are a great way to get to meet other families affected by NF, ask questions, and just be yourself with your friends. We will have some trinkets to give out and lots of conversation and friendship! If you are in the Lansing area, come join us!!

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NF1 and Breast Cancer Research with Dr. Matthew Steensma
Dec
5
6:00 PM18:00

NF1 and Breast Cancer Research with Dr. Matthew Steensma

Join NF Michigan for a presentation with Dr. Matthew Steensma. Dr. Steensma will present new research on NF1 and breast cancer (increased risk in the NF1 population). Dr. Steensma will explain opportunities for patient participation. We'll hear a review of Dr. Steensma's studies of NF1 skin tumors and of the malignant degeneration of plexiform neurofibromas.

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NF Camp Michigan
Aug
17
to Aug 19

NF Camp Michigan

NF Camp Michigan will provide opportunities for children and teenagers ages 5-16 to build self-esteem, gain independence, and forge relationships with other children living with NF. Parents will benefit by connecting with other parents who have children with this disorder.

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4th of July Parade + NF Awareness
Jul
4
10:15 AM10:15

4th of July Parade + NF Awareness

Please Join us to help us spread awareness for NF in the Grandville July 4th Parade. Meet at 10:15, Parade at 11. Route is 1.5 Miles. We will be handing out NF Cards and silly bands to the 3,000+ people attending the parade. Please contact Bob Jones at wabakenneta@aol.com if you can join us. Park at the Family Fare lot, 3960 44th St SW Grandville, MI. WEAR YOUR NF GREEN!

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Jun
23
9:30 AM09:30

West Bloomfield Miles 4NF

Join us for the 8th Annual Miles 4NF. This great event has raised $129,721.00 since 2011 including $27,194..00 in 2017 for NF Research. See the below links to register and see how you can make a difference with your contribution to this event.

Register at http://www.planetReg.com/Miles 4NF 2018 West Bloomfield.

Walk Letter for Potential Sponsors

Walk Letter for Donations

Thank You Letter for Donations

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