NF Michigan
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NF Michigan
  • About/
    • What is NF?
    • Who We Are
    • Board
    • What Does NF Michigan Mean to Me?
  • Resources/
    • Resources
    • NF Specialists
  • Programs/
    • Awareness and Education
    • Camp and Networking
    • Grants & Scholarships
    • Medical Research
  • Events/
    • Events
    • Event Photos
  • News/
  • Get Involved/
    • Ways to Help
    • Chromosome Club
    • Camp 20-20-20
    • Planned Giving
    • Volunteer
    • Start a Fundraiser
  • Contact/
  • Donate/
Miles-4NF-2019-Alexander-Sara-and-me-2000Wide.jpg
NF Michigan

Enhancing the quality of life for those affected by Neurofibromatosis in Michigan.

Events

NF Michigan
  • About/
    • What is NF?
    • Who We Are
    • Board
    • What Does NF Michigan Mean to Me?
  • Resources/
    • Resources
    • NF Specialists
  • Programs/
    • Awareness and Education
    • Camp and Networking
    • Grants & Scholarships
    • Medical Research
  • Events/
    • Events
    • Event Photos
  • News/
  • Get Involved/
    • Ways to Help
    • Chromosome Club
    • Camp 20-20-20
    • Planned Giving
    • Volunteer
    • Start a Fundraiser
  • Contact/
  • Donate/
NF Michigan's 40th Anniversary Art Show & Fun Walk
Jun
14
9:00 AM09:00

NF Michigan's 40th Anniversary Art Show & Fun Walk

  • Saturday, June 14, 2025
  • 9:00 AM 12:00 PM 09:00 12:00
  • McGraft Park (map)
  • Google Calendar ICS

Join us for a morning filled with a Fun Walk, Art Show, Inspiration Station for creation and Silent Auction! We want to see you there!

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Goat Yoga at Sandhill Crane Vineyards
May
18
12:30 PM12:30

Goat Yoga at Sandhill Crane Vineyards

  • Sunday, May 18, 2025
  • 12:30 PM 1:30 PM 12:30 13:30
  • Sandhill Crane Vineyards (map)
  • Google Calendar ICS

Enjoy a playful yoga experience with goats! The event will feature adorable and entertaining goats, that is good for the mind, body, soul, and NF Research!

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Goat Yoga at Cherry Creek Cellars
May
9
6:00 PM18:00

Goat Yoga at Cherry Creek Cellars

  • Friday, May 9, 2025
  • 6:00 PM 8:00 PM 18:00 20:00
  • Cherry Creek Cellars (map)
  • Google Calendar ICS

Enjoy a playful yoga experience with goats! The event will feature adorable and entertaining goats, that is good for the mind, body, soul, and NF Research!

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NF Michigan's Annual Holiday Party 2024
Dec
7
2:00 PM14:00

NF Michigan's Annual Holiday Party 2024

  • Saturday, December 7, 2024
  • 2:00 PM 4:00 PM 14:00 16:00
  • Roselle Park Multipurpose Building (map)
  • Google Calendar ICS

Join us to celebrate the holiday season. We will have light snacks and a visit from Santa!

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Stress and Coping in Adults with NF1 - Presented by Mikaela Bradley, MSGC, Certified Genetic Counselor
Nov
20
7:00 PM19:00

Stress and Coping in Adults with NF1 - Presented by Mikaela Bradley, MSGC, Certified Genetic Counselor

  • Wednesday, November 20, 2024
  • 7:00 PM 8:00 PM 19:00 20:00
  • Online Meeting (map)
  • Google Calendar ICS

Join us as Certified Genetic Counselor, Mikaela Bradley, shares the findings from her research that asked the question "Does a family history of neurofibromatosis type 1 influence the stress and coping experiences of adults with NF1?"

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Fall Coffee Chat
Nov
9
1:00 PM13:00

Fall Coffee Chat

  • Saturday, November 9, 2024
  • 1:00 PM 2:00 PM 13:00 14:00
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

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2024 Ice Cream Social
Aug
25
1:00 PM13:00

2024 Ice Cream Social

  • Sunday, August 25, 2024
  • 1:00 PM 4:00 PM 13:00 16:00
  • 1871 Spruce Drive Commerce Charter Township, MI, 48390 (map)
  • Google Calendar ICS

I scream, you scream, we all scream for ice cream! Join us to wrap up the summer with a sweet treat.

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NF Camp Michigan - Sherman Lake
Aug
9
to Aug 11

NF Camp Michigan - Sherman Lake

  • Fri, Aug 9, 2024 5:00 PM 17:00 Sun, Aug 11, 2024 10:00 AM 10:00
  • Sherman Lake Camp (map)
  • Google Calendar ICS

Provides opportunities for children aged 5-16 to build self-esteem, gain independence, and forge relationships with other children living with NF.

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10th Annual NF Golf Outing 2024
Aug
3
8:00 AM08:00

10th Annual NF Golf Outing 2024

  • Saturday, August 3, 2024
  • 8:00 AM 12:59 PM 08:00 12:59
  • Broadmoor Golf Course (map)
  • Google Calendar ICS

Join us at the 10th Annual Golf Outing to raise money for NF.

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38th Annual NF Summer Picnic 2024
Jul
28
1:00 PM13:00

38th Annual NF Summer Picnic 2024

  • Sunday, July 28, 2024
  • 1:00 PM 4:00 PM 13:00 16:00
  • Rogue River Park (map)
  • Google Calendar ICS

NF Michigan’s Annual Summer Picnic! A great afternoon to spend with the community.

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Miles 4 NF Walk 2024
Jun
22
9:30 AM09:30

Miles 4 NF Walk 2024

  • Saturday, June 22, 2024
  • 9:30 AM 12:00 PM 09:30 12:00
  • Marshbank Park (map)
  • Google Calendar ICS

Our annual walks are not only to raise funds for NF research, but also to raise NF awareness and to provide support to the NF community.

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March Coffee Chat
Mar
2
10:30 AM10:30

March Coffee Chat

  • Saturday, March 2, 2024
  • 10:30 AM 11:30 AM 10:30 11:30
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

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January Coffee Chat
Jan
23
7:00 PM19:00

January Coffee Chat

  • Tuesday, January 23, 2024
  • 7:00 PM 8:00 PM 19:00 20:00
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

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Annual Holiday Party
Dec
2
2:00 PM14:00

Annual Holiday Party

  • Saturday, December 2, 2023
  • 2:00 PM 4:00 PM 14:00 16:00
  • The Vanderlaan Room at Hager Park, 8212 28th Ave, Jenison, MI 49428 (map)
  • Google Calendar ICS

We will have light snacks and a visit from Santa!

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November Coffee Chat
Nov
7
7:00 PM19:00

November Coffee Chat

  • Tuesday, November 7, 2023
  • 7:00 PM 8:00 PM 19:00 20:00
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

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Ice Cream Social
Aug
27
1:00 PM13:00

Ice Cream Social

  • Sunday, August 27, 2023
  • 1:00 PM 4:00 PM 13:00 16:00
  • 1871 Spruce Drive Commerce Charter Township, MI, 48390 (map)
  • Google Calendar ICS

Terri Rausch is once again hosting an ice cream social!

Join us on Sunday, August 27th from 1-4pm

1871 Spruce Dr. Commerce Charter Twp, MI 48390

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Family Camp Weekend - Sherman Lake
Aug
11
to Aug 13

Family Camp Weekend - Sherman Lake

  • Fri, Aug 11, 2023 5:00 PM 17:00 Sun, Aug 13, 2023 10:00 AM 10:00
  • Sherman Lake Camp (map)
  • Google Calendar ICS

Provides opportunities for children aged 5-16 to build self-esteem, gain independence, and forge relationships with other children living with NF. Visit the Camp website HERE.

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37th Annual NF Summer Picnic
Jul
30
1:00 PM13:00

37th Annual NF Summer Picnic

  • Sunday, July 30, 2023
  • 1:00 PM 4:00 PM 13:00 16:00
  • Johnson Park (map)
  • Google Calendar ICS

Our annual picnic has a new name - The Three Sisters NF Picnic. Click on the event for details of the afternoon and the new name.

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Miles 4 NF Walk 2023
Jun
17
9:30 AM09:30

Miles 4 NF Walk 2023

  • Saturday, June 17, 2023
  • 9:30 AM 12:00 PM 09:30 12:00
  • Marshbank Park (map)
  • Google Calendar ICS

Our annual walks are not only to raise funds for NF research, but also to raise NF awareness and to provide support to the NF community.

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Park Playdate
May
20
11:00 AM11:00

Park Playdate

  • Saturday, May 20, 2023
  • 11:00 AM 1:00 PM 11:00 13:00
  • Richardson-Sowerby Park (map)
  • Google Calendar ICS

Join Hilary Berens for a fun day in the park.

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May Educational Event
May
2
6:00 PM18:00

May Educational Event

  • Tuesday, May 2, 2023
  • 6:00 PM 7:00 PM 18:00 19:00
  • Google Calendar ICS

NF Awareness Month Educational Event

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March Coffee Chat - IN PERSON
Mar
18
10:00 AM10:00

March Coffee Chat - IN PERSON

  • Saturday, March 18, 2023
  • 10:00 AM 11:00 AM 10:00 11:00
  • Tim Hortons (map)
  • Google Calendar ICS

Join us for our March Coffee Chat

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Holiday Party
Dec
3
2:00 PM14:00

Holiday Party

  • Saturday, December 3, 2022
  • 2:00 PM 4:00 PM 14:00 16:00
  • The Vanderaan Room at Hager Park (map)
  • Google Calendar ICS

The Vanderlaan Room at Hager Park
8212 28th Avenue
Jenison, MI, 49428


We will have light snacks and a visit from Santa! RSVP to the Facebook event. Use this link to write the names and ages of children so Santa knows what gifts to buy.

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November Coffee Chat on ZOOM
Nov
16
7:00 PM19:00

November Coffee Chat on ZOOM

  • Wednesday, November 16, 2022
  • 7:00 PM 8:00 PM 19:00 20:00
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

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October Coffee Chat on ZOOM
Oct
10
7:00 PM19:00

October Coffee Chat on ZOOM

  • Monday, October 10, 2022
  • 7:00 PM 8:00 PM 19:00 20:00
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

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September Coffee Chat on ZOOM
Sep
17
10:30 AM10:30

September Coffee Chat on ZOOM

  • Saturday, September 17, 2022
  • 10:30 AM 11:30 AM 10:30 11:30
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

View Event →
Family Camp - Sherman Lake
Aug
19
to Aug 21

Family Camp - Sherman Lake

  • Fri, Aug 19, 2022 5:00 PM 17:00 Sun, Aug 21, 2022 10:00 AM 10:00
  • Sherman Lake Camp (map)
  • Google Calendar ICS

Provides opportunities for children aged 5-16 to build self-esteem, gain independence, and forge relationships with other children living with NF. Visit the Camp website HERE.

View Event →
36th Annual NF Summer Picnic
Jul
31
1:00 PM13:00

36th Annual NF Summer Picnic

  • Sunday, July 31, 2022
  • 1:00 PM 4:00 PM 13:00 16:00
  • Johnson Park (map)
  • Google Calendar ICS

NF Michigan will provide individual boxed lunches from Boardwalk Subs. Attendees are asked to bring their own drinks, plates and utensils.

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Grandville Fourth of July Parade
Jul
4
11:00 AM11:00

Grandville Fourth of July Parade

  • Monday, July 4, 2022
  • 11:00 AM 1:00 PM 11:00 13:00
  • Google Calendar ICS

The parade steps off from 44th street and Wilson Ave at 11AM on July 4th.

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Miles 4 NF 2022
Jun
18
9:30 AM09:30

Miles 4 NF 2022

  • Saturday, June 18, 2022
  • 9:30 AM 12:00 PM 09:30 12:00
  • Google Calendar ICS

Our annual walks are not only to raise funds for NF research, but also to raise NF awareness and to provide support to the NF community.

View Event →
April Coffee Chat on ZOOM
Apr
21
7:00 PM19:00

April Coffee Chat on ZOOM

  • Thursday, April 21, 2022
  • 7:00 PM 8:00 PM 19:00 20:00
  • Google Calendar ICS

Join us for a virtual coffee chat on zoom!

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NF Michigan Newsletter

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Thank you!



Neurofibromatosis Michigan is a registered 501(c)(3) charity EIN 38-3501633

Please address donation checks to “NF Michigan” and mail to:
NF Michigan, P.O. Box 6026, Grand Rapids, MI 49516

© Copyright 2019 Neurofibromatosis Michigan