NF1 and Breast Cancer Research with Dr. Matthew Steensma
Dec
5
6:00 PM18:00

NF1 and Breast Cancer Research with Dr. Matthew Steensma

Join NF Michigan for a presentation with Dr. Matthew Steensma. Dr. Steensma will present new research on NF1 and breast cancer (increased risk in the NF1 population). Dr. Steensma will explain opportunities for patient participation. We'll hear a review of Dr. Steensma's studies of NF1 skin tumors and of the malignant degeneration of plexiform neurofibromas.

View Event →
NF Camp Michigan
Aug
17
to Aug 19

NF Camp Michigan

NF Camp Michigan will provide opportunities for children and teenagers ages 5-16 to build self-esteem, gain independence, and forge relationships with other children living with NF. Parents will benefit by connecting with other parents who have children with this disorder.

View Event →
4th of July Parade + NF Awareness
Jul
4
10:15 AM10:15

4th of July Parade + NF Awareness

Please Join us to help us spread awareness for NF in the Grandville July 4th Parade. Meet at 10:15, Parade at 11. Route is 1.5 Miles. We will be handing out NF Cards and silly bands to the 3,000+ people attending the parade. Please contact Bob Jones at wabakenneta@aol.com if you can join us. Park at the Family Fare lot, 3960 44th St SW Grandville, MI. WEAR YOUR NF GREEN!

View Event →
Jun
23
9:30 AM09:30

West Bloomfield Miles 4NF

Join us for the 8th Annual Miles 4NF. This great event has raised $129,721.00 since 2011 including $27,194..00 in 2017 for NF Research. See the below links to register and see how you can make a difference with your contribution to this event.

Register at http://www.planetReg.com/Miles 4NF 2018 West Bloomfield.

Walk Letter for Potential Sponsors

Walk Letter for Donations

Thank You Letter for Donations

View Event →