Currently there is no cure for NF but there are facilities and people focused on helping and treating the many aspects of NF1, NF2 and schwannomatosis. There are NF specialists in Grand Rapids, Ann Arbor and Detroit.  Contact any of these clinics for information or to make an appointment.

NF Clinic Grand Rapids
Helen DeVos Children's Hospital
Children's Outpatient Center
330 Barclay NE, Suite 203
Grand Rapids, MI 49503
APPOINTMENTS: 616-391-2414
INFORMATION: 616-451-3699
FAX:  616-391-2505

Comprehensive NF1 diagnosis and management for both adults and children.  NF2 diagnosis and monitoring for adults and teens. Schwannomatosis diagnosis and management.

University of Michigan Pediatric Genetics
A. Alfred Taubman Health Care Center
1500 East Medical Center Drive
Floor 1 Reception: D
Ann Arbor, MI 48109-5718
Phone:  734-764-0579
Fax:  734-763-6561

University of Michigan Adult Genetics
24 Frank Lloyd Wright Dr.
GPS: 4029 Ave Maria Drive Lobby C, Suite 1300
Ann Arbor, MI  48105
Phone:  734-763-2532

University of Michigan Neurosurgery
A. Alfred Taubman Health Care Center
1500 E Medical Center Dr
Floor 2 Reception G
Ann Arbor, MI 48109
Dr. B. Gregory Thompson, neurosurgeon
Phone: 734-936-7010
Fax: 734-936-9294
NF2, all ages

Beaumont Children's Hospital
3555 W 13-Mile Rd
Royal Oak, MI 48073
Phone:  248-551-7370
Kate Gowans, MD, hematology-oncology
Eileen MCCormick, DO, neurology
Children only

Henry Ford Health System NF Clinic
2799 West Grand Blvd., Suite K-11
Detroit, MI 48202
Phone:  313-916-2723
Tobias Walbert, MD, Neurology
Adults only