For the past seven years NF Michigan has granted over $188,000 to fund Neurofibromatosis (both NF1 and NF2 research. While there is no cure for NF and the only known “treatment” is surgical removal of tumors which may sometimes grow back, there are many researchers across the country and right here in Michigan working tirelessly for both. Year after year these researchers are discovering things that continue to help with medical and social issues related to the disorder and one day we hope to see an end to NF!
2011 - Dr. Xia Wang - $5,000
2012 - 2014* Dr. Matthew Steensma - $47,000
2015 - Dr. Albert Cornelius - $24,500
2016 - Dr. Raymond Mattingly - $25,000
2017 - Drs Steensma & Mattingly - $50,000
2018 - Drs Steensma & Mattingly - $37,000
Additionally, we provided a $10K grant to the Univ. Wisconsin Madison’s “Piggy Project” in Nov. 2014, in partnership with NF Network.