Medical Research

For the past seven years NF Michigan has granted over $188,000 to fund Neurofibromatosis (both NF1 and NF2 research. While there is no cure for NF and the only known “treatment” is surgical removal of tumors which may sometimes grow back, there are many researchers across the country and right here in Michigan working tirelessly for both. Year after year these researchers are discovering things that continue to help with medical and social issues related to the disorder and one day we hope to see an end to NF!


2011 - Dr. Xia Wang - $5,000

2012 - 2014* Dr. Matthew Steensma - $47,000

2015 - Dr. Albert Cornelius - $24,500

2016 - Dr. Raymond Mattingly - $25,000

2017 - Drs Steensma & Mattingly - $50,000

2018 - Drs Steensma & Mattingly - $37,000

Additionally, we provided a $10K grant to the Univ. Wisconsin Madison’s “Piggy Project” in Nov. 2014, in partnership with NF Network.

NF1 Medical Research Grants

neurofibromatosis research grant

NF2 Medical Research Grants